Serious Illness Survey for Community-Based Care
ToolPublished Apr 4, 2025
A RAND research team developed the Serious Illness Surveys using a systematic literature review of tools that measure experiences with serious illness care; qualitative interviews with a diverse set of patients, family caregivers, and health care providers across the United States; a technical expert panel composed of experts in serious illness care quality; and cognitive interviews with patients and family caregivers to test draft questions and questionnaires. Wherever possible, the team adapted survey items from previously validated survey instruments, such as the Consumer Assessment of Healthcare Providers and Systems (CAHPS©) Clinician and Group Survey and the CAHPS© Hospice Survey.
The team adapted the first Serious Illness Survey, the Serious Illness Survey for Home-Based Programs, to allow the assessment of serious illness care more broadly (i.e., regardless of whether the patient received care from a home-based program). The resulting surveys are the full and abridged versions of the Serious Illness Survey for Community-Based Care. The abridged version of the Serious Illness Survey for Community-Based Care should be used if the cost or time of administering the full version would be prohibitive. The survey materials are available in English and Spanish.
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Document Details
- Copyright: RAND Corporation
- Availability: Web-Only
- Year: 2025
- DOI: https://doi.org/10.7249/TLA1547-3
- Document Number: TL-A1547-3
Citation
RAND Style Manual
Price, Rebecca Anhang, Melissa A. Bradley, Danielle Schlang, Joshua Wolf, Anagha Alka Tolpadi, Feifei Ye, Maria DeYoreo, Marc N. Elliott, and Joan M. Teno, Serious Illness Survey for Community-Based Care, RAND Corporation, TL-A1547-3, 2025. As of April 8, 2025: https://www.rand.org/pubs/tools/TLA1547-3.html
Chicago Manual of Style
Price, Rebecca Anhang, Melissa A. Bradley, Danielle Schlang, Joshua Wolf, Anagha Alka Tolpadi, Feifei Ye, Maria DeYoreo, Marc N. Elliott, and Joan M. Teno, Serious Illness Survey for Community-Based Care. Santa Monica, CA: RAND Corporation, 2025. https://www.rand.org/pubs/tools/TLA1547-3.html.
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This research was funded by the Gordon and Betty Moore Foundation and carried out within the Quality Measurement and Improvement Program in RAND Health Care.
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