RAND's divisions conduct research on a uniquely broad front for clients around the globe.
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Tool
Apr 4, 2025
The Serious Illness Survey for Community-Based Care is available in full and abridged versions. The survey materials are available in English and Spanish.
Research
Feb 17, 2025
We conducted a review of English-language, peer-reviewed articles 2008 to 2023 describing variation in NH hospice use to characterize disparities and inform educational and quality initiatives to improve End-of-Life care in NHs.
Nov 7, 2024
We examined who provides spiritual care to African American hospice patients and caregivers. We conducted a pilot study with a community hospice in the South and interviewed caregivers, clergy and chaplains.
Sep 19, 2024
Using a nationally representative sample of Medicare beneficiaries, we examined the association between physician age and patterns of end of life (EOL) care with a broad range of EOL care measures.
Aug 14, 2024
Accurate 6-month prognostication can enhance access to hospice for people living with Alzheimer’s Disease or related dementias, including those who have a different primary diagnosis. Therefore, prognostication must be reconceptualized.
Apr 25, 2024
Our study tested a sequential web-mail mode for administering a patient and family care experience survey in the hospice setting and examined its effects on response rates and reported perceptions of the quality of care.
Feb 12, 2024
We examine how the COVID-19 pandemic may have influenced the characteristics of patients receiving hospice care, the settings in which they received care, and their care experiences using national data from the CAHPS Hospice Survey.
Dec 4, 2023
Care experiences declined in 2020-2021 by a small amount for hospice patients without COVID-19 and by a medium-to-large amount for patients with COVID-19. Differences in care experience between patients with and without COVID-19 narrowed over time.
Nov 17, 2023
We developed a conceptual model for concurrent hospice and dialysis care and a corresponding resource list.
Aug 16, 2023
In this analysis of national CAHPS Hospice Survey data from 653,208 caregiver respondents, reflecting care received from 3107 hospices, family caregivers reported worse care experiences at for-profit hospices compared with not-for-profit hospices.
May 4, 2023
A recent CMS analysis revealed a lack of patient-reported measures in palliative care, particularly in symptom management and communication. We used a patient-centered approach to develop and test two measures for patients receiving palliative care.
Press
Feb 27, 2023
Family caregivers of patients treated by more than 3,100 U.S. hospices reported worse care experiences on average from for-profit hospices across all of the domains assessed, including help for pain and getting timely care.
